How to create impact with patient and public involvement

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About this video

Research in health and medical sciences is always inevitably carried out with the intention to bring some benefit to the public. Yet, it is rare to have an active research participation from the group that is most impacted by it. Public Patient Involvement (PPI) aims to resolve this by ensuring that the best interests of patients, carers, healthcare service users and the public are showcased by an active involvement of the target population in the study.

In this module, Aoife Cahill, Programme Manager - R&D for National Health, shares her expertise on what PPI is, why the public should be involved in research and how PPI can benefit your research. You hear from Bláthín Casey, Program Manager of a successful PPI group at D1 Now. She shares why such involvement is needed to advance health science and provide better health care. Also, Cameron Keighron, a young PPI member who  shares his experience of participating in research on diabetes and how his contributions have made an impact on the studies. .

You will come away with a better understanding of PPI, how you can apply it in your research and how it will help you create a social impact with your work.

About the presenter

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Aoife Cahill
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Programme Manager - R&D for National Health

Aoife received her PhD in 2004 from Department of Obstetrics and Gynaecology, University College Dublin. Following this she worked for a medical publishing company before joining the Health Research Board, Ireland in 2007 as a project officer in the Clinical and Applied Biomedical unit. In 2014 she joined the Post Award Management and Evaluation team as programme manager. During this time Aoife managed the careers, projects and programmes award portfolio. Aoife took up the position of programme manager, R&D for National Health in the Pre-award team in early 2018. Her current portfolio includes developing and implementing initiatives relating to national health research, implementation of the public and patient involvement (PPI) initiatives in research, representing the HRB within European initiatives and funding partnerships with the Health Services Executive and the Royal College of Physicians in Ireland.

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Cameron Keighron
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Member of D1 Now PPI group

Cameron is a 25 year old Type 1 Diabetic who is involved with the D1 Now YAP in Galway. He has been involved since the project began in 2014, his role in D1 Now involves sitting on the Young Adult Panel, contributing to the outputs of the group. He sits on the steering group and feeds into the decisions of key stakeholders in the group and hence contribute to the overall direction of the group. . He was diagnosed with Type 1 Diabetes at 16 years old and always had an interest in Diabetes research. He completed an undergraduate degree in Biotechnology in 2016 and a masters degree in Regenerative Medicine in 2018. Currently he works as the Education Officer in NUI Galway Students' Union. Outside of the University he is passionate about fencing, juggling and campaigning for LGBT+ rights, where he is the current chair of AMACH! LGBT+ in Galway City.

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Bláthín Casey
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Post-Doctoral researcher at D1-Now

Bláthín is a Post-Doctoral researcher with the D1-Now study team under Prof Sean Dineen and Prof Molly Byrne here at the HBCRG at NUI Galway. She is looking forward to bringing her experience to the team and assisting in the development of a complex intervention to improve health outcomes among young adults with Type 1 Diabetes in Ireland.

Blathín graduated from the University of Limerick (UL) in 2013 with a BSc, 1st class honours degree in physiotherapy. She was awarded a scholarship from MS Ireland in 2014 to enter a structured PhD programme at the University of Limerick (UL) under Prof Susan Coote and the MS Research team at UL. Bláthín submitted her thesis in Decmeber 2017, namely, ‘Activity Matters’. ‘Activity Matters’ aimed to develop a web-based physical activity resource to enable people with MS to become more active.

Although early in her research career, Blathin has 10 peer-reviewed publications and has presented her work orally at both a national and international level. Research interests include working with individuals with long-term conditions and changing health behaviours within these populations.

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